For the ones who had a notion, a notion deep inside That it ain’t no sin to be glad you’re alive. I wanna find one face that ain’t looking through me I wanna find one place, I wanna spit in the face of these Badlands… On Labor Day, I completed my first organized “race” (well, unless […]
An Open Letter to BioMarin Pharmaceutical – BMN 673 and Compassionate Use
UPDATE: Jan 2, 2014. Sadly, after a gallant 7.5 year battle with cancer, Andi Sloan passed away last night. Her mother posted this on Facebook: Thank each of you for enriching Andrea’s life in more ways than we know. She took every friend, every blessing, and every challenge, including her 7-1/2 year battle with cancer, […]